Patient InvolvementThe Youth Advisory Board (YAB)
is about ensuring the ethos of ‘about us, with us’ is central to REACH. YABs have been developed using what has been learnt so far from the pilot Youth Trial Board (YTB) Project. The YTB Project is in its third year (completing in December 2019) and has set out to develop a model of meaningful and active patient participation in paediatric HIV clinical trials.
What is a YAB?
A YAB is a group of young people aged between 15-19 (at the point of becoming a member) that includes those affected by HIV, TB and/or HCV. In REACH there are two YAB groups.
There will be a minimum of 14 young people involved across the two groups. They will work together on set tasks, activities and also act as champions for others, giving a voice for their peers affected by HIV, TB and/or HCV.
Implementing YAB in REACH
The YTB Project spent a year developing an interactive, youth-friendly, activity-based training programme with young people living with HIV across four different countries. Russia is only the fifth country in the world to have a adopted this model, with the training having been modified for REACH. It focuses on a cohort study and the three different health conditions.
All YAB members receive training that covers:
- Understanding HIV, HCV and TB, their similarities and differences
- Understanding what a cohort study is and how it works
- What is REACH and what are the roles of YAB members within REACH
Over the two years of REACH the YABs will undertake specific activities including:
- Developing patient and public information about what REACH is and what it plans to do
- Developing aspects of the REACH website
- Producing patient and public friendly materials that report what REACH has found out
- Looking at ways to engage the wider community in understanding and taking an interest in REACH
YAB members are also able to engage with additional activities as and when they arise. By the end of REACH we expect to have a set of youth-created online and paper resources which explain the project and its findings in a clear and public-friendly way.